Cystic Fibrosis and Pancreatic Disease

Persons in charge:

Frank Boudewes (Chair of Group)

Isabelle Scheers (Secretary)

50 active members

Description: The goals of the group are to generate collaborative international research, management guidelines and consensus statements in cystic fibrosis and exocrine pancreatic disease in children. All participants at ESPGHAN are invited to attend our open meetings.

Projects and other activity:

Studies:

A large, well-controlled prospective study on probiotics in CF (Stephanie Van Biervliet, Bruno Hauser)

Prospective international study of Distal Intestinal Obstruction Syndrome (Anne Munck): manuscript in preparation

Prospective multicenter study of  New Diagnostic modalities and Ursodeoxycholic Acid treatment in CF Liver disease (Roderick Houwen)

Collaboration with EMEA on Gastrointestinal endpoints in drugs trials in CF (Frank Bodewes, Jan Tamaniau)

Assessment of pancreatic exocrine function in Children (Chris Taylor): manuscript in preparation

Monothematic meeting planned:

International Symposium on CF Liver Disease (Dominique Debray)

Reports: -