For World IBD Day this year, ESPGHAN has put the hidden costs of Inflammatory Bowel Diseases (IBD) in the spotlight. With a societal cost (68% of the total cost) more than twice that of direct healthcare costs there is an industry-wide consensus to show greater recognition of the wider impact of IBD. Evidence has shown IBD has resulted in lost productivity through loss of working days, time spent caring for children with IBD, impacted education and secondary health effects caused by the psychological effects of the disease.
In recognition of the hidden cost of the disease, and in order to help reduce the burden of IBD on society, ESPGHAN are joining forces with the European Federation of Crohn’s and Ulcerative Colitis Associations (EFCCA) to call on policy makers to take the following four key steps:
World IBD day takes place this Sunday, 19th May. Follow the discussion on our Twitter using the #WorldIBDday and let’s #MakeTheInvisibleVisible.
Our information video can be found here.
On May 16th, 2018 ESPGHAN partnered with the Association of European Coeliac Societies (AOECS) for International Coeliac Day.
The two societies agreed to focus activities on raising awareness of paediatric coeliac disease; specifically, the issue of under-diagnosis and the need for earlier diagnosis.
ESPGHAN & AOECS developed a manifesto for change, titled Paediatric Coeliac Disease – earlier diagnosis for better lifelong health. The manifesto included an overview of paediatric coeliac disease, the high-risk groups, common symptoms and three steps to promoting earlier diagnosis. In addition to the manifesto, ESPGHAN and the AOECS produced an infographic on coeliac disease in children
The infographic provided key statistics and information of coeliac disease throughout Europe, as well as details of groups at a heightened risk and the main symptoms of coeliac disease in children
ESPGHAN provided National Societies with the opportunity to translate the manifesto and infographic to their native language to increase reach and visibility of the key messaging
The manifesto was translated into ten languages and the infographic to eight different languages.
To find out more information about ESPGHAN’s awareness day activity, or if you have any queries about International Coeliac Day, please email Natalie Wettergren on: firstname.lastname@example.org.