World IBD Day World IBD Day takes place on 19 May each year and unites people worldwide in their fight against Crohn's disease and ulcerative colitis, known as inflammatory bowel diseases.
ESPGHAN are working together with The European Federation of Crohn's & Ulcerative Colitis Associations (EFCCA) this year to raise awareness of the hidden social costs of paediatric IBD; such as sick leave, loss of productivity, loss of earnings - not only for the patient but also family members; as well as raising awareness of paediatric IBD generally.
ESPGHAN and EFCCA encourage Member and National Societies to join them in promoting this message through their traditional, online and social channels on World IBD Day 2019.
To find out more information about ESPGHAN’s awareness day activity, or if you have any queries about World IBD Day, please email Natalie Wettergren on: media@. espghan.org
On May 16th, 2018 ESPGHAN partnered with the Association of European Coeliac Societies (AOECS) for International Coeliac Day.
The two societies agreed to focus activities on raising awareness of paediatric coeliac disease; specifically, the issue of under-diagnosis and the need for earlier diagnosis.
ESPGHAN & AOECS developed a manifesto for change, titled Paediatric Coeliac Disease – earlier diagnosis for better lifelong health. The manifesto included an overview of paediatric coeliac disease, the high-risk groups, common symptoms and three steps to promoting earlier diagnosis. In addition to the manifesto, ESPGHAN and the AOECS produced an infographic on coeliac disease in children
The infographic provided key statistics and information of coeliac disease throughout Europe, as well as details of groups at a heightened risk and the main symptoms of coeliac disease in children
ESPGHAN provided National Societies with the opportunity to translate the manifesto and infographic to their native language to increase reach and visibility of the key messaging
The manifesto was translated into ten languages and the infographic to eight different languages.
To find out more information about ESPGHAN’s awareness day activity, or if you have any queries about International Coeliac Day, please email Natalie Wettergren on: email@example.com.