World IBD Day 2019

For World IBD Day this year, ESPGHAN has put the hidden costs of Inflammatory Bowel Diseases (IBD) in the spotlight. With a societal cost (68% of the total cost) more than twice that of direct healthcare costs there is an industry-wide consensus to show greater recognition of the wider impact of IBD. Evidence has shown IBD has resulted in lost productivity through loss of working days, time spent caring for children with IBD, impacted education and secondary health effects caused by the psychological effects of the disease.

In recognition of the hidden cost of the disease, and in order to help reduce the burden of IBD on society, ESPGHAN are joining forces with the European Federation of Crohn’s and Ulcerative Colitis Associations (EFCCA) to call on policy makers to take the following four key steps: 

  1. Greater resources should be provided to enable more subspecialty paediatric GI training to better manage the diseases in childhood.
  2. Long-term and gradual transitional arrangements between paediatric care and adult care should be a key part of the care pathway to ensure the most effective and least disruptive long-term disease management.
  3. Improved education and workplace policies that better consider the needs of PIBD patients and parents and carers of children with PIBD should be implemented.
  4. Children with IBD must be treated by a multidisciplinary team looking not only at the medical aspects but also areas related to the patient’s life, such as lifestyle, diet, social and physiological needs.

World IBD day takes place this Sunday,  19th May. Follow the discussion on our Twitter using the #WorldIBDday and let’s #MakeTheInvisibleVisible.

Our information video can be found here.

IBD Manifesto
IBD Infographic

Coeliac Disease Awareness Day - May 16th 2018

On May 16th, 2018 ESPGHAN partnered with the Association of European Coeliac Societies (AOECS) for International Coeliac Day.

The two societies agreed to focus activities on raising awareness of paediatric coeliac disease; specifically, the issue of under-diagnosis and the need for earlier diagnosis.

ESPGHAN & AOECS developed a manifesto for change, titled Paediatric Coeliac Disease – earlier diagnosis for better lifelong health. The manifesto included an overview of paediatric coeliac disease, the high-risk groups, common symptoms and three steps to promoting earlier diagnosis. In addition to the manifesto, ESPGHAN and the AOECS produced an infographic on coeliac disease in children

The infographic provided key statistics and information of coeliac disease throughout Europe, as well as details of groups at a heightened risk and the main symptoms of coeliac disease in children

ESPGHAN provided National Societies with the opportunity to translate the manifesto and infographic to their native language to increase reach and visibility of the key messaging

The manifesto was translated into ten languages and the infographic to eight different languages.

Societies are permitted to utilise and share the manifesto for change and infographic on this webpage, via their own websites, magazines and social channels.  

To find out more information about ESPGHAN’s awareness day activity, or if you have any queries about International Coeliac Day, please email Natalie Wettergren on: media@remove-this.espghan.org

Coeliac Disease Awareness Day

Coeliac Disease infographic
Coeliac Disease Manifesto