Monothematic Conference Alagille Syndrome

January 26 - 28, 2023

General Information

Alagille syndrome is a genetic disorder that affects primarily the liver and the heart. Problems associated with the disorder generally become evident in infancy or early childhood.
The disorder is inherited in an autosomal dominant pattern, and the estimated prevalence of Alagille syndrome is 1 in every 30,000 to 1 in every 40,000 live births. It is named after the French pediatrician Daniel Alagille, who first described the condition in 1969 Severe liver disease is a major cause of morbidity.
Increased plasma bile acid levels may cause severe pruritus, necessitating biliary diversion procedures. Liver transplantation may be required  in patients with progressive liver synthetic dysfunction, intractable pruritus, osteodystrophy, or massive variceal bleeding.
We aim at increasing awareness and knowledge of the disease within our society, as we believe a better diagnosis skills and treatments are necessary.

This school is supported by the ESPGHAN Education Partner Programme.


This school is planned for onsite participation only. We will be carefully monitoring the situation in Israel and Europe as well as national COVID-19 regulations. ESPGHAN reserves the right to postpone/cancel the course or change its current format if deemed necessary to protect the health of our delegates, faculty and staff.

For more information please contact the ESPGHAN Office.

Registration & Fees

Registration will open in fall 2022.
Registration Fees: TBD

Kindly use the online registration form on this page. Registrations by email cannot be accepted. If you experience any issues with the online tool, please contact
Registrations will be accepted on a 1st come, 1st serve basis, up to a maximum of 80 delegates. Please be aware that the course might be full before the registration deadline, in which case your name will be added automatically to the waiting list.

The course language is English.


Coming soon

Cost Coverage

ESPGHAN will cover the following for onsite delegates

  • 2 nights accommodation in single occupancy (pre-arranged by ESPGHAN)
  • Dinners (pre-arranged by ESPGHAN)
  • Course catering
  • Course Material


Registration will open in fall 2022.


If you have any questions, please contact the ESPGHAN Office for details.
Phone: +41 (0)22 9000 401